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Hard-to-reach families
Boy with walking support

Families with their own needs are often described by schools as being difficult to engage in their child's education. Barriers can be literacy, numeracy or social difficulties, physical or mental health problems, disabilities, etc.

 

Blewitt et al (2011) cite key issues and barriers, and suggest how schools can address them, increase families' involvement and, as a result, improve children's outcomes. Please read the report to find out more.

Negative consequences of seeking help

Difficulties may be related to perceptions of stigma. Blewett et al (2011) found that both young people and their parents feared being seen as 'not coping' and inadequate:





I have always been brought up to keep things in the family... A family member would say 'leave it' if anyone thought about talking to an outsider.

Stepfamilies
Girl in chair with carer

Contact a Family (2003) suggests that 10% of children with a disability live in step families.

 

Research shows that step-families tend to not make use of family support services, often because they do not perceive themselves as core family members (Smith et al, 2001). This is especially true for young, minority-ethnic and non-resident stepfathers (HMS Treasury and DfE, 2007).

Parental mental health

Caring for a child with a disability, together with concerns for their child's future and feelings of isolation from other parents raising children without disabilities, may negatively affect parents' mental health (Lundy, 2011).

Some families...employ poorer coping strategies, which are in turn a predictor of poorer mental health...

Newman et al, 2010

Hatton et al (2002) found that rates of distress, depression and anxiety among parents from BME communities were up to ten times higher than comparative UK populations.

Positive parental relationships

Early intervention improves the mental health, relationships and emotional wellbeing of parents.

Newman et al, 2010

Positive parental relationships enhance the overall well-being of parents of children with disabilities, and the following may strengthen them:

  • Understanding their child's disability.
  • Training in communication and conflict resolution.
  • Assistance in defining their individual roles and responsibilities related to the child with a disability.
  • Informal social support (e.g. peer support groups).
  • Access to counselling.
Parents with disabilities
Girl cutting paper with scissors

Disabled parents are an invisible group (Disabled Parents Network ; http://www.disabledparentsnetwork.org.uk/ ), often hampered by unhelpful or negative attitudes and poor accessibility (Maguire et al, 2009).

 

Brunner and colleagues (2009) suggest that schools consider how they:

  • Support disabled parents to be involved.
  • Provide good, accessible communication.
  • Make changes to school leadership and ethos.
  • Help parents to disclose impairments.
Boy with walking support

...I do have a sort of feeling of being ashamed of having difficulties. It's not something I talk about...so it's quite good that somebody understands...why I'm not there. Its having...[parent support adviser] giving a wee phone call and saying oh how are you.

A parent, in Brunner et al, 2009

Parents with learning disabilities want...
Boy in chair with carer
  • Practical and professional help.
  • Their views to be taken seriously.
  • To be treated as partners.
  • Services to be supportive, respectful and considerate.

(Quinton, 2004)

 

They also want 'to feel in control in dealing with parenting problems' and 'first wanted information to help them solve problems and then specialist advice' (Morris and Wates, 2006).

Adjustments need not be complicated
Boy with walking support

One parent suggests:

...it's probably beneficial for [parents with] every kind of disability...to actually walk round the nursery or a primary school, or whatever, when there are no children... to know whether you can get through with your guide dog or whether you can fit your wheelchair through doors...

A parent, in Brunner et al, 2009

It is the parents themselves who have the knowledge about 'what they need and how they function best and what would help the most' (Booth and Booth, 2003).

Activity
Girl cutting paper with scissors

What are the minority and cultural issues for parents in your school?

 

Select your priority area, and critically review practice-based solutions, drawing conclusions for your own setting.

References
opened book

Blewett, J., Noble,J., Tunstill, J. and White, K. (2011) Improving Children's Outcomes by Supporting Parental Physical and Mental Health, London: C4EO.

Online at: http://www.c4eo ... /physical_mental_health_full_knowledge_review.pdf

 

Booth, T. and Booth, W. (2003) Self-advocacy and supported learning for mothers with learning difficulties, Journal of Intellectual Disabilities, 7 (2), 165-193. Online at: http://www.supportedparenting.com/projects/SLPpaper_Final_copy.pdf

 

Brunner, R., Maguire, R., Stalker, K. and Mitchell, J. (2009) Supporting Disabled Parents' Involvement in their Children's Education: Good practice guidance for schools, reading: CfBT Education Trust (available at http://www.leeds.ac.uk/disability-studies/archiveuk/maguire/2500_Guidance_5.pd).

 

Carpenter, B. and Russell, P. (2005) Early intervention in the UK: current policy and practice, in: Guralnick, M. (ed.) A Developmental Systems Approach to Early Intervention: National and international perspectives, Baltimore, MD: Paul H. Brooke.

 

Contact a Family (2003) Relationships between parents who have a disabled child: a survey of over 2,000 parents in the UK: a summary, London: Contact a Family,

online at: http://www.cafamily.org.uk/pdfs/relationshipsurvey.pdf

 

Hatton, C., Akram, Y., Shah, R., Robertson, J.M. and Emerson, E. (2002) Supporting South Asian Families with a Child with Severe Disabilities: Executive summary, Lancaster: University of Lancaster, excerpt online at: http://www.lancs.ac.uk/shm/dhr/publications/asianfamexec.pdf

 

Kelly, A. (2009) A step beyond parenthood: Taking on a special-needs child, Mail Online, online at: http://www.dailymail.co.uk/home/you/article-1227208/A-step-parenthood-Taking-special-needs-child.html#ixzz1hDD2AxvH

 

Lundy, H.F. (2011) Parental stress, socioeconomic status, satisfaction with services, and family quality of life among parents of children receiving special education services, (Counseling and Psychological Services Dissertations No. 64), Atlanta, GA: Georgia State University. Online at: http://digitalarchive.gsu.edu/cps_diss/64

 

Maguire, R., Brunner, R., Stalker, K. and Mitchell, J. (2009) Disabled Parents' Involvement in their Children's Education: An examination of good practice, Reading: CfBT Education Trust, online at: http://www.leeds.ac.uk/disability-studies/archiveuk/maguire/2500_DPReport_5.pdf

 

Morris, J. and Wates, M. (2006) Supporting Disabled Parents and Parents with Additional Support Needs, London: Social Care Institute for Excellence, online at: http://www.scie.org.uk/publications/knowledgereviews/kr11.pdf

 

Newman, T., McEwen, J., Mackin, H. and Slowley, M. (Barnardo's Policy and Research Unit) (2010) Improving the Wellbeing of Disabled Children (up to Age 8) and their Families through Increasing the Quality and Range of Early Years Interventions. London: Centre for Excellence and Outcomes in Children and Young People's Services (C4EO), online at: http://www.c4eo.org.uk/themes/disabledchildren/increasingquality/files/c4eo_improving_the_wellbeing_through_early_years_full_knowlege_review.pdf

 

Quinton, D. (2004) Supporting Parents: Messages from research, London: Department of Health/Department for Education and Skills.

 

Smith M., Robertson, J., Dixon, J., Quigley, M. and Whitehead, Z. (2001) A Study of Stepchildren and Step-parenting, London: Thomas Coram Research Unit.

 

Wolfendale, S. (2000) Special needs in the early years: prospects for policy and practice, Support for Learning, 15 (4), 147-151.